May is Ehlers-Danlos Syndrome Awareness Month

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May is Ehlers-Danlos Syndrome Awareness Month

You can observe EDS Awareness Month by learning more about this rare condition or by supporting someone you know who has it.

Basic Facts About EDS

Ehlers-Danlos syndrome (EDS) is a group of disorders that affect connective tissues. Connective tisseus are tissues that support the skin, bones, blood vessels, and other organs. Defects in connective tissues cause the signs and symptoms of Ehlers-Danlos syndrome, which vary from mildly loose joints to life-threatening complications.
(From http://ghr.nlm.nih.gov/condition/ehlers-danlos-syndrome)

Ehlers-Danlos Syndrome Month on Facebook

Types of EDSEDS Zebra Stripe Butterfly 24X20 Poster

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Symptoms of EDS

There are different types of EDS and hypermobility syndromes so symptoms may vary. The following are the most common symptoms of EDS.

  • Flexible joints, due to loose connective tissue
  • Swan Finger
  • Cardiac issues
  • Easy Bruising
  • Stretchy skin due to weakened connective tissue
  • Fragile skin and abnormal scarring
  • Inability to get numb from Novocaine

More symptoms of EDS 

If you have the Vascular type of EDS then you may experience:

People who have the vascular subtype of EDS sometimes share distinctive facial features. These features include a thin nose, thin upper lip, small earlobes and prominent eyes. Also they may have thin, translucent skin which bruises very easily. Sometimes the underlying blood vessels are visible through the skin.

Mayo Clinics description of Ehlers-Danlos Syndrome Symptoms

Treatment of EDS and Hypermobility Syndromes

There is no known cure for Ehler’s Danlos Syndrome. Treatments that are offered are mostly to control pain, such as  medications, physical therapy and bracing to try to support joints and prevent dislocations. In the type of EDS that causes weak blood vessels, keeping the blood pressure lowered is necessary too.

Cause of Ehlers-Danlos Syndrome

EDS is believed to be an inherited condition due to gene mutations.  Defects in the following genes, ADAMTS2, COL1A1, COL1A2, COL3A1, COL5A1, COL6A2, PLOD1, TNXB cause EDS. These genes provide instructions on how to assemble collagen — except for ADAMTS2, which provides instructions for making the proteins that work with collagen.

Good explanation by Healthline on the causes of EDS

Ehlers-Danlos syndrome Websites

EDS Patient Blogs

EDS Articles

EDS Support Groups

Books about EDS

Ehlers Danlos Awareness Items

Ehlers Danlos Syndrome - EDS Artist Made T ShirtEhlers Danlos Syndrome Awareness Zebra Heart Shirt





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