May is ME/CFS Awareness Day and Month

May is ME/CFS Awareness Day and Month

Why is ME/CFS Awareness Day on May 12th?

ME/CFS Awareness Day – May 12th honors the birthday of Florence Nightingale, an important social reformer, statistician, and the founder of modern nursing. Despite being mostly bedridden with a painful and fatiguing illness resembling ME/CFS , she established the Nightingale Training School in 1860. This May 12th as Nightingale’s birthday and as of 2021 will be the  29th year of ME/CFS International Awareness Day.

ME Awareness Week being the week of May 12th each year.

ME Awareness Month was started in May 2006 by the British charity Invest in ME Research

Chronic fatigue syndrome is a disorder characterized by extreme fatigue. Tests usually will show no  underlying medical condition. The fatigue often worsens with physical activity or with stress.  No matter how much you sleep  you often wake up feeling just as tired as when you went to sleep.

What are the symptoms of ME/CFS?

ME stands for Myalgic encephalomyelitis and CFS stands for Chronic Fatigue Syndrome.

  • Fatigue (mental and physical)
  • Post-exertional malaise
  • Neurological symptoms such as loss of memory or trouble concentrating
  • Sore throat
  • Enlarged lymph nodes in your neck or armpits
  • Unexplained muscle pain
  • Migrating joint pain
  • Headaches
  • Feeling tired or having extreme exhaustion after waking or upon physical activity
  • Exercise intolerance
  • Sensitivity to smells, chemicals and toxins, lights, sound, medicine and temperature changes

Some ME/CFS Facts

  • ME/CFS is most common in people between 40 and 60 years old.
  • It effects women more then men.

I found this interesting, right on the CDC site it says,

” Most medical schools in the United States do not have ME/CFS as part of their physician training. The illness is often misunderstood and might not be taken seriously by some healthcare providers. More education for doctors and nurses is urgently needed so they are prepared to provide timely diagnosis and appropriate care for patients.”


There is no cure for ME/CFS. Treatment is based on managing symptoms such as physical therapy for building strength or pain medicines for controlling pain.


While the exact cause is unknown, many patients dealing with ME/CFS believe it was triggered by either a stressful event or by another illness such as Lyme disease, Epstein-Barr Syndrome or Covid-19. Further research is needed.

Relevant Links

More extensive and detailed ME/CFS symptoms here.


There is no known cause of Chronic Fatigue Syndrome.

How do they Test for CFS?

According to Mayo Clinic there is no known testing for Chronic Fatigue Syndrome. The doctor will take your history, do an exam and rule out other conditions then make a clinical diagnosis on his findings.

Websites about Chronic Fatigue Syndrome

ME/CFS Blogs

ME/CFS Support Groups

Chronic Fatigue Syndrome Books

CFS/ME Awareness Items

Hope Matters 2 CFS Chronic Fatigue Syndrome T Shirt 

Also See:

May 12th is Fibromyalgia Awareness Day

May is Lyme Disease Awareness Month

Leave a Reply

Your email address will not be published.

Social Share Buttons and Icons powered by Ultimatelysocial